Children’s Hospital of Philadelphia Denies that Amelia Rivera Was Declared Ineligible for Transplant Based on Her Intellectual Disability
Amelia has Wolf-Hirschhorn Syndrome, a rare genetic disorder characterized by severe physical health issues and intellectual disability. At a meeting with a surgeon and a social worker at the Children’s Hospital of Philadelphia, parents Chrissy and Joe Rivera were told that Amelia would not be eligible for a life-prolonging kidney transplant because she is “mentally retarded”.
Chrissy blogged about the incident in a Wolf-Hirchhorn Syndrome internet support community, attracting media attention and sparking the creation of an online petition to get Children’s Hospital of Philadelphia to reconsider its position.
The hospital has agreed to reevaluate its decision regarding Amelia’s eligibility for transplant, and continues to deny that it discriminates on the basis of intellectual disability.
For the full story and commentary on the Rivera case, please read: http://www.girlwiththecane.com/amelia-rivera/