Toronto District School Board Gets “Proactive” About Indigenous People

Jobs within the Toronto District School Board done by “Chiefs” will now be done by “Managers”, out of respect for Indigenous cultures.  The move was taken after considering the calls to action of Canada’s Truth and Reconciliation Commission, which published a report in 2015 about the Canada’s history, stretching over a century, of placing Indigenous children in residential schools.

The issue is that no one had complained. Toronto District School Board Curator of Indigenous Arts and Culture Dan Redbird says no one from the Indigenous community asked for the change, and that “Chief” isn’t a word that has anything to do with Indigenous traditions.

“It was an imposed word that the government introduced with the Indian Act back in the 1800s.” Redbird told Nick Bosvert of CBC News.  

He acknowledged that it’s come to be used as a micro-aggression, and likes that the Toronto District School Board has taken the step, but “doesn’t envision a dramatic impact from the change.”

Image Description: Young white woman wearing a white blouse and dark blazer rests her head on her laptap keyboard. Her long brown hair is in a ponytail.

Content Note: Residential Schools, Nothing for Us Without Us, Abuse, Missing and Murdered Indigenous Women, Forced Sterilization, Retard

Toronto District School Board Wants to be “Proactive”

Here’s some more about the word “Chief” that I learned from an interview on CBC Radio One’s “As It Happens” on October 11:

  • It means “leader”
  • Its origins are Roman and Old French
  • In French, it’s “chef” (which the Toronto District School Board will not be replacing)

The changes that the Toronto District School Board plans to make affect approximately 20 job titles.

I have thoughts.

The “As It Happens” interview was with  Ryan Bird, the Toronto District School Board’s Manager of Corporate and Social Media Relations. The interview in its entirety can be heard here.

Click for a transcript, at “Toronto District School Board: No Chiefs”

I was in the car with my father as we listened to the interview, and it wasn’t long before I turned to him and said, “And here’s where my friend Geoff would say, ‘Did anyone complain about this?'”

Just as interviewer Carol Ott said, “Did you get complaints?”

Geoff and I have been around and around on the issue of people deciding for other people what *should* offend them. Often it’s been disability-related – Geoff has asked why people who aren’t disabled should decide what terminology should offend disabled people, like the word “retard”, and I’ve said, “I didn’t decide that ‘retard’ should offend intellectually disabled people – they’ve told many people themselves that it does.” More recently, it’s been about the choice to keep Washington’s football team the “Redskins” – Geoff says that Indigenous people don’t find the name offensive, and sends me media clips and articles that support his position. I have media clips and articles of my own by Indigenous people that do find it offensive. We do what we do in our debates on most things – agree to disagree.

And if an organization using “Chiefs” instead of “Managers” is offensive to some or all Indigenous people, the terminology should change. I’d absolutely support the Toronto District School Board ( or any organization) talking to the Indigenous community regarding changing anything that they see as potentially concerning , asking “Would changing this be healing?” and acting on those recommendations. But the Toronto District School Board didn’t do that, or if they did they appeared to reject the recommendations of the community, in favour of being “proactive” (Ken Bird’s word) – deciding for the Indigenous community that they *should* find the Toronto District School Board’s use of “Chiefs” offensive, and therefore worthy of addressing before people started to complain.

And they’re wondering why there’s been mixed reaction to their move that they didn’t anticipate.

“Nothing for Us Without Us”

The disability advocacy community has a saying – “Nothing for us without us”.   It reminds people that make the decisions that affect disabled people that disabled people need to be involved in the process. Policy that’s meant to help disabled people, made without consulting disabled people, could end up being useless to us.

“Nothing for us without us” kept going through my mind as I listened to this interview. The point of the Truth and Reconciliation Commission and its final report was to document the ways that Canada’s government hurt Indigenous people with its insistence that it knew better than their communities how to raise their children (and the horrific abuse that went on in the residential schools) and exploring ways of “establishing and maintaining a mutually respectful relationship between Aboriginal and non-Aboriginal peoples in this country.”

My opinion only, of course…but it’s not “proactive” or respectful to make policy based on what non-Indigenous people think should insult Indigenous people without consulting them, especially when:

  • There’s plenty of easily-accessible evidence out there to suggest that this might not be the case – in this case, commentaries on the word “chief” and its origins, as well as its relationship to Indigenous communities, by both Indigenous and non-Indigenous people. They all agree – it’s a word imposed on Indigenous people, not one with any significance to Indigenous people themselves.
  • There’s no indication that the issue that the policy addresses is actually an issue.
  • The “proactive” behaviour is actually an example of historically problematic behaviour – Non-Indigenous people deciding that they know what’s best for Indigenous people and going ahead and doing it, without caring what Indigenous people think about it.

Again, not “proactive” – offensive. I find it offensive, at least, and there seems to be some evidence that Indigenous people do as well. Indigenous Canadian author Robert Jago expressed his feelings on Twitter:

Are Good Intentions Always Enough?

I’m not suggesting that the Toronto District School Board didn’t have good intentions. I’m suggesting  its action was tone-deaf.

I’m not an Indigenous woman, and I won’t pretend to know what it’s like to live in an Indigenous person in Canada. But have an imagination, empathy, and as a disabled woman, membership in a group with a similar (not identical, but similar) history of forced institutionalization by the government in highly abusive environments, marginalization, and ongoing discrimination…and hearing about this action by the Toronto District School Board, the rationale behind it, and their self-congratulatory pats on the back for it, made me furious.

I’m a writer and I believe in the power of words to shape attitudes and actions. I’ve had this debate with friends as well. But reconciliation won’t happen because 20 people in a school board get a word in their title changed. You want to make an impression on the kids your schools, Toronto District School Board?  Get some Indigenous speakers in to talk about life for kids their age in reservation towns like Attawapiskat.

Let them learn about the class action suit launched earlier this month by Indigenous women, alleging that they’d been sterilized without consent in the 1990s.

Let them hear stories from the families of over 1000 missing and murdered Indigenous women.

Let them hear stories and ask questions, and find out how they can help. I guarantee that some of these kids have never thought about these issues before simply because no one’s ever talked to them about them…and that once they’re thinking, they’ll want to learn more…and get involved in the dialogue between Indigenous and non-Indigenous people about the best ways to bring about reconciliation.

Dialogue, not assumptions. Dialogue will bring about change – it won’t be as easy as changing signs on office doors and printing out new business cards for 20 employees, but it will be deeper and more effective and we’ll all be better people for it.

All That Being Said…

Perhaps there are Indigenous people on the Board at the Toronto District School Board who thought this move was a good idea, and the Board was acting on their guidance. If that’s the case, people should please let Ken Bird know that he needs to speak to this – because nothing in the nearly-eight-minute interview with “As It Happens” or in the multiple media accounts that I read suggests that the Toronto District School Board made this change with any consultation from the Indigenous community.

As always, feel free to correct me if I’m wrong about any of this.

My Brain AVM: Thoughts on Pain

I’ve talked before about how I have a lot of privilege, considering that I had a brain AVM that required surgical intervention and that I’m now disabled. Part of that privilege is that the whole journey came with very little physical pain.  I’ve had some reminders of that recently.


Vector illustration - red grunge stamp with "PAIN" written in white letters. Keyword: brain AVM

Image Description: Vector illustration – red grunge stamp with “PAIN” written in white letters

Content Note: Chronic pain, stroke, brain surgery, dental work, friend death, Hurricane Harvey, Hurricane Irma, Hurricane Maria, Puerto Rico hurricane damage, Las Vegas mass shooting

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I got a terrible headache when my brain AVM first leaked and caused a hemorrhagic stroke in the middle of a job interview. I know now that my pain tolerance is pretty high, because I not only finished the interview (and got the job), I walked to the doctor’s office and then walked home. I sometimes get migraines, and it’s not the pain that sends me to the hospital (even though the pain certainly isn’t pleasant)…it’s that my migraines make me throw up, and after a while I have to get a shot of Gravol to settle my stomach enough to let me keep my seizure medication down.

But, like most people, I don’t like pain, and I’m glad that I didn’t experience much of it with my brain AVM and stroke. I had some awful headaches after the surgery to treat my brain AVM, but who wouldn’t have headaches after having their head opened?

My friend Jason, who had a stroke when he was a bit older than me (not related to a brain AVM; he was in a car accident) wasn’t so lucky. His stroke came with central post-stroke pain. He didn’t talk about it much, but his mother once told me that he almost always had intense pain in his affected hand. I don’t know if I could have dealt with that and stayed as positive as I have through my recovery.

I’ve had periods since my stroke where I’ve dealt with chronic pain. Specifically, I’ve injured my weak leg a couple of times, badly enough that at times even a short walk to town was too painful to think about. But the pain ended with rest, elevation, and ice.

Mouth and teeth pain is a whole different ball game.

Pain That Won’t Be Ignored

At the beginning of September, my teeth were sore – all of them, it seemed. My head was aching. My ear, which had been hurting on-and-off all summer for no reason that any doctor could find, was aching. I was pretty sure that I knew what was wrong, but a trip to my dentist confirmed my suspicions that I’d been grinding my teeth again, and needed to started wearing my mouthguard to bed at night.

“Why haven’t you been wearing your mouthguard?” my dentist asked,

“Because I don’t like it,” I said, feeling (and probably sounding) like a mopey five-year-old.

“You need to wear it, or this will keep happening.”

So I did. And when the headaches and mouth pain didn’t go away, I figured that it was just because I’d made my muscles especially sore, and went about my business. Until one day, when it felt like the side of my face literally exploded – I didn’t know that teeth could hurt that much, and with my head pounding and the stabbing pain in my ear, my dentist got me in for a same-day appointment. He armed me with prescriptions for antibiotics to treat an infected tooth and Tylenol 3s for pain control, and I went home and cried on the couch while I waited for the pills to kick in.

I’m now two weeks after a root canal, perhaps looking at surgery to remove wisdom teeth that have just broken through after not moving for twenty years, and still apparently grinding my teeth somehow without knowing it, because my mouth and/or head/ear is always hurting to some degree. I have a muscle relaxant that I can take daily to deal with the muscle pain caused by the teeth grinding, and if I take ibuprofen throughout the day I can usually keep the pain reasonably at bay. But when I’m home I often have a cold can of pop held to my jawline on the right side of my face, because…numb is good.

And sometimes I still cry, because even with the muscle relaxant, and the ibuprofen, and the cold pop can, everything hurts. And I really didn’t realize until this round of mouth pain just how powerless it makes you feel, to be in a lot of pain and know that there’s nothing you can do about it.  It’s lonely. It’s exhausting. I can see why having to deal with severe chronic pain drains people and makes them depressed. I can see why it makes them desperate.

I’m looking at people who have to deal with chronic pain with new empathy, and I have a renewed sense of gratitude for the privilege of getting through this brain AVM journey relatively pain-free.

Jason died a few years back from complications related to other injuries he sustained during the car accident. I miss him, but I’m glad he’s not in pain anymore.

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Pardon me while I get a little political.

Friends in the US are having a very difficult time right now – hurricanes, health care uncertainty, and yesterday a horrific mass shooting in Las Vegas. I struggled to find what I wanted to say about it, and then decided to leave words far wiser than any I could come up with…

…and ask you to please consider doing what you can to support humanitarian efforts in Las Vegas and in areas of the US affected by the recent wave of hurricanes, especially Puerto Rico.

Here’s a list of links:

Support for Victims of Las Vegas Mass Shooting

Support for Puerto Rico – Hurricane Maria

Support for Florida, Louisiana, Puerto Rico, and Texas – Hurricane Harvey, Hurricane Irma, Hurricane Maria

Portlight – Portlight was created specifically to provide emergency aid during weather disasters to disabled people whose needs might otherwise cause them to fall through the cracks. Portlight is helping with relief efforts for all hurricanes.

More of My Writing About Disability and Emergency Preparedness

Manatee County “Interpreter” Signs Nonsense ASL at Hurricane Irma Press Conference

I’m surprised that it took me until early this week to hear about this story, because it does appear that it was covered by several media outlets. But here we are. I only heard on the September 19th edition of The Daily Show that Manatee County in Florida fucked up with its ASL interpretation during a televised press conference designed to get evacuation information out to citizens just before Hurricane Irma hit.

Content Note: Ableism, Weather Emergency, Emergency Planning, Privilege, Classism, Disrespect, PWD as an afterthought

Young white woman wearing a orange shirt holds her hands in front of her, just above chest level, palms facing her with her thumbs up and fingertips almost touching. Her nail polish is orange, and her hair is strawberry blonde. She is smiling. Keyword: Manatee County

Image Description: Young white woman wearing a orange shirt holds her hands in front of her, just above chest level, palms facing her with her thumbs up and fingertips almost touching. Her nail polish is orange, and her hair is strawberry blonde. She is smiling.

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Seriously, Florida?

It’s this sort of thing that makes disabled people one of the most vulnerable groups in America when it comes to weather emergencies, as I’ve written about before.

The issue isn’t that Manatee County didn’t think about providing ASL interpretation, as you can see in this video. The person who uploaded this video captioned it with what the interpreter is signing, and I think it’s clear what the main issue is.

But for those who don’t want to/can’t watch the video…the issues are:

This is unacceptable and infuriating, for a few reasons.

To Start…

Certified interpreters were available. Florida Governor Rick Scott used interpreter Sam Harris:

Sarasota County also used a qualified interpreter at its news conferences.

VisCom, a company that has provided Manatee County with interpreters in the past, wasn’t called about providing services for Hurricane Irma communications. Charlene McCarthy, the founder of VisCom, had offered to send in an interpreter for a September 9 press conference in Manatee County, but her offer was declined; no interpreter was used for that press conference.

For some reason, Manatee County decided not to use an interpreter. It’s not as if no one was anticipating the need for a press conference; the media started talking about Irma and where she would at least potentially hit just after Hurricane Harvey landed.

Meet Me At Camera Three, Manatee County Administration

All this brings one word to mind: afterthought. Deaf and hard-of-hearing people were an afterthought as you prepared to get potentially life-and-death information to your residents about a weather emergency. Think about what it must feel like to know you’re an afterthought.

It’s this half-ass attitude toward accessibility that continues to give disabled people the impression that their communities of residence don’t value their money, skills, desire to give back to their communities, or (in this case) even their lives. Go ahead and deny that this was the message you meant to send, Manatee County – it’s the message that you *did* send, with your failure to take simple steps to ensure that Deaf and hard-of-hearing people in your communities got the same access to the life-and-death press conference information that hearing people did.

You owe your Deaf and hard-of-hearing communities an apology, and a promise that this won’t happen again.

And for Those of You Who’d Tell Me…

You know who you are, you keyboard warriors.

Yes, you. The ones making comments like these on the internet coverage:

  • Deaf people activate CLOSED CAPTIONING on their tv sets. I guess numbnuts in government and around the country are unaware of that secretive tidbit of information. They also get text messages, emails, instant messages and communications from each other/family and read local news. They can translate audio to text. It’s not like a reeetarded interpreter is their only source in the year 2017. Duhhh
  • “I think what is shocking is that in 2017, taxpayers have to pay for that nonsense. they practically give away voice to text software, and there are plenty of free apps that would instantaneously give the devil a much more complete picture of what the officials are saying…Shameful waste of money.”
  • “Considering the few people who require this, it was a waste of time anyhow”
  • “Reminds me of the fake sign language interpreter at Nelson Mandela’s Memorial, standing right next to Barry O and flailing about – that was quality comedy!”

Listen, folks. There are whole bunch of reasons why these comments are disgusting, but I don’t even need to get into them, because they’re all invalid for one, simple, legal reason:

Title II of the ADA dictates that “state and local governments must ensure that their communications, including emergency communications, are fully accessible to people with disabilities.” 

Accessibility is the law, and it’s been that way in America for 27 years. End of story.

But the fact that people felt comfortable letting fly with that sort  of ableist (not to mention classist, in some cases) shit  in the comments section of a story about how Manatee County’s lack of preparation meant that a group of disabled people didn’t get emergency information about a Category 5 hurricane….well, it made me feel ill. I wanted to draw some attention to it.

That sort of willful ignorance about the challenges that disabled face from the people in their  communities – well, it’s beyond disappointing.  It’s gross, really.

Seriously, America. Grow up.

Canada continues to send its thoughts and prayers for those affected by the recent hurricanes…

Interesting article on captioning vs ASL

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My Brain AVM: Disability and Prayers

This week I’ve received a lovely gift: a prayer shawl from the church I attended when I was a child. It got me thinking about disability and prayers.

Content Note: Religion, “I’ll Pray for You”, Ableism, Accessibility, Politics, Social Attitudes toward Disability, Christianity, Mental Health, Parent Death

Close-up on a woman's hands and wrists, wearing a bracelet, holding an older man's hand (wearing a wrist watch.) Speech bubble from the left of the picture says, "I'll pray for you." Speech bubble from the right says, "...Sorry?" Keyword: disability and prayers

Image Description: Close-up on a woman’s hands and wrists, wearing a bracelet, holding an older man’s hand (wearing a wrist watch.) Speech bubble from the left of the picture says, “I’ll pray for you.” Speech bubble from the right says, “…Sorry?”

The shawls are a ministry of my childhood church. A group knits shawls for those in the congregation that need healing, the shawls are blessed and prayed over, and given away. My father received one several years ago when he was in the hospital a few years back. but the ministry hadn’t yet started when I was in the hospital after surgery for my brain AVM and stroke recovery. A dear friend asked last week if I’d ever gotten one, and I said, “No,” and one showed up at my door with this note:

This shawl was knitted by {name omitted} and blessed with prayers for your healing ~ Body, Mind and Spirit

***

The appearance of this gift was timely, because in a Facebook group to which I belong, made up mainly of disability advocates but also of people just generally interested in disability issues, disability and prayers also came up. a thread got a bit derailed the other night when a presumably well-meaning individual offered to pray for us all.

“No prayers, please,” responded one person.

Group member Belinda Downes, who educates people about facial differences,  asked the group moderator if she could explain why the offer would be problematic to many people in the group, and then went on to do so. I quote Belinda here, with her kind permission:

“Thanks for the offer to pray. I’m a Christian too…so may I respectfully explain why offering to pray ‘for us’ is not helpful? If this is not appropriate…please let me know.

1) I understand as a Christian that we are taught to pray at all times about all things, and to have compassion for others. It’s not so much the prayer that is the problem but the ‘compassion’.

2) Speaking for myself, when strangers who don’t know me offer to pray for my scarred face, I know they are praying for the wrong thing. The people offering to pray for me try to imagine what it what be like to be me, and their guess is always a very sad story about loss and loneliness, but personally I’m very happy and have many great long friendships.

3) Because of point two, when people offer to pray for me, I don’t hear kindness, I hear inappropriate judgement. I hear that people think my life is sad and wrong just because of the way I look. And because of that I have the same reaction that {name omitted} has.

4) My advice would be to pray for what you know about, not what you think you know. And God will lead you to really know that He wants you to know about. God Bless.”

I don’t feel like I can comment specifically on everything that Belinda has said, because I’m not a Christian anymore. I’m a happy agnostic –  I figure that there’s something out there bigger than me, and (most days) I don’t feel any real need to pin it down beyond that, for me or for anyone else. I’m happy to let people define it for themselves, as long as they’re not hurting others in the process.

But I do have thoughts on disability and prayers. Let’s talk a little bit about that, and then I’ll tell you about what in Belinda’s post I *can* comment on.

Disability and Prayers: Some Boring Background About Losing My Religion

I was Christian when I was growing up. I was a devout Christian all through my teen years, in fact. My family was Anglican, but my faith had more evangelical leanings – I’d prayed the salvation prayer, and I believed it, even if as a result my faith life mostly vacillated between feeling like I wasn’t a good enough Christian or scared of what would happen if I wasn’t a good enough Christian.

I noticed in my last year of high school that sometimes I didn’t feel like I could “buy into” what my faith was telling me anymore. I simply found it hard to believe that people around me who were doing amazing things to help other people were going to hell just because they weren’t Christian. I wondered why God would judge my gay friends so harshly, and expect me to as well. I didn’t know that I was taking my first little steps away from Christianity.

Sometimes, when I talk about to Christians now, they say, “Did you think about it this way, though? Like – ” and I stop them right there, because I didn’t decide to leave Christianity on a whim. It was a journey. There was a lot of discussion with a lot of people (Christians and non-Christians, of all ages and in all stages of their faith), a lot of crying, a lot of anger expressed that I didn’t even know that I had in me, and a lot of thinking about ideas that I didn’t even understand at the time. My mother said, “Try not to think about it too much.” I wanted to say to her, “How can I not think about it?” In some moments I was very sad, in others I was terrified, in others I was exhilarated…because in leaving one world, a new one was opening up to me, and it was full of possibilities.

Getting through all of that, to a place where I can comfortably, with peace, say, “I’m not a Christian anymore, but if you are, great. Tell me about it!” took about six years, and I did alongside  defining events of my adult life to date.

Losing my grip on my mental health, when I thought that struggle was over.

Losing my mother, when I thought I’d have her for decades longer.

Losing my ability to move my body to move my body the way I wanted, a possibility that I’d never considered. My brain AVM and stroke changed all that.

Losing the life that I’d planned for myself, fighting to gain any bit of it back that I could, with every bit of will that I could muster, and then learning to let it go and build a new life.

So my convictions on my spirituality have been tried and tested, and I’m quite happy and at peace with where I am (and hope the same is true for you, because it’s a nice feeling.)

Disability and Prayers: My Position

I’m afraid that I’m going to sound contradictory. But…

Despite the fact that I’m not a Christian anymore and that I haven’t been to my childhood church more than five times in the last twenty years, I love the prayer shawl that I received this week. I love the idea of something warm to wrap around me, imbued with the loving intentions and focus of others who know me and my family, even if they don’t see me around church anymore. I live in a small town; these people still see me.  Most of them saw me grow up, so they know that there were rough times long before the brain AVM and stroke, and they see that I’ve built a life for myself as a disabled person since the stroke.

I know that lots of people in my community were praying for me when I was in surgery, and afterward, when we weren’t sure what would happen, and as I was recovering, and I’ll always be grateful. And I still welcome the prayers for healing of mind, body and spirit from the people who made my shawl  because I know that I can use this loving focus of intention. After all, there are times when, for a variety of reasons, totally unrelated to my disability, my body, mind and spirit do feel wounded and raw and in need of healing.

I still miss my mother, twenty years after her death.

I’ve often feel helpless and sad for friends and family that are facing far too much grief and uncertainty.

My body isn’t as quick to recover when it’s injured. Pain in my knee and foot set my back significantly this summer.

I wonder what’s ahead for me and if I’m making the right choices for my life.

It’s nice to know that people are thinking of me and that they care, and I will think of that when I wear my prayer shawl on cold nights.

However, in general I feel the same was as Belinda about disability and prayers. When strangers or people who don’t know me well say they’ll pray for me, I feel like there’s an assumption that my weak leg and a weak arm must make my life difficult and unhappy. There are some things about my life that I’d change, but I manage quite well with my disabilities and I don’t give them a whole lot of thought – but, as I’ve written about before, I’m lucky enough to have landed in circumstances that mitigate the effects of constant, debilitating systemic ableism.

I can’t stop you from praying that my physical disabilities be healed, but it’s not what I need. Or even want, really.

Disability and Prayers: If You Want to Pray…

If I could have anything…I’d want a serious commitment from government at all levels (and the funding and resources to back it) that *all* Canadians have what they need to live safe and healthy lives in their community of choice, where they can contribute their talents and feel like their presence is valued and appreciated.

As far as that concerns disabled people, the federal government  is taking some steps with their efforts to create disability legislation similar to the US Americans with Disabilities Act.

But lawyer and  disability activist David Lepofsky declared back in 2015 that Ontario was unlikely to reach its goal of total accessibility by 2025 – bad news, because an accessible Ontario is good for everyone, not just disabled Ontarians.

I’d really like disability-friendly governments.

I need…

I need good snow removal on the sidewalks in town and on steps and ramps so that I don’t fall and hurt myself. I don’t need electric doors to work – I can manage – but, damn it, it’s nice, because I’ve got one arm/hand to work with and sometimes I’m carrying stuff in my hand and have bags on my arm and my cane hooked over my elbow…and other disabled people really do need them. I need people to take me seriously when I say, “This is an access issue.”

I need open minds and open hearts and people to keep talking and not making assumptions about me and my disabled friends – assumptions about what we can and can’t do, about what *you* can and can’t do (and about what you should and shouldn’t do), about what’s legal and illegal. We need people to talk *to* us, not around us or about us – especially when the talk is about things that will impact our lives.

My life’s practically an open book anyway since my brain AVM and stroke, but if I don’t want to answer, I’ll just say so. I’d rather you ask. Just keep it respectful. Respect and dignity. We all deserve that.

Disability and Prayers: Bottom Line

There’s a bit of a list of things I’d love you to pray for, if you want to pray for me:  Friendly governments, accessible spaces, open hearts and minds, respect and dignity. But if you’re still not sure – ask, don’t assume. Even on the days when I look like I’m miserable (and I know that I have them), it’s probably got very little to do with my weak side.

This one rambled a bit. Sorry. Thanks for reading.

Visit Belinda Downes’ Facebook Page – Coffee with Belinda Downes

 

 

 

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SunRise B&B Refuses Service to Visually Impaired Man Because of his Service Dog

My dad let me know about a story I missed last week, about a Toronto couple being turned away from a bed and breakfast in Prince Edward County, Ontario because of the service dog traveling with them. The owners of the Sunrise B&B in Bloomfield, Ontario are, according to CBC.ca, “upset about what happened,” but stand by their decision to insist that Jill Greenwood, her husband David (who is visually impaired), and his guide dog Romy, find alternate accommodation.

I have thoughts.

Content Note: Ableism, human rights violation, expectation of accommodation

Golden labrador guide dog lies on the grass, alert with head up. Dog's black harness is visible. Just off to the side, we see the ower's legs in blue jeans, and their white cane. Keyword: SunRise B&B

Image Description: Golden labrador guide dog lies on the grass, alert with head up. Dog’s black harness is visible. Just off to the side, we see the ower’s legs in blue jeans, and their white cane.

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Legally Speaking

John and Joan Stenning, the proprietors of the Sunrise B&B, say that the Greenwoods didn’t tell them them that they’d be coming with a service dog. They say that had they been told, they would have informed the Greenwoods that their “no pets” policy includes service animals.

That set off alarm bells in my head (as I’m sure it does for many readers) because most businesses know better than to try and bar a service animal.  However, in Ontario, a number of factors have collided to make the bed and breakfast industry a strange little pocket of the hospitality industry where lawyers can apparently argue that the Stennings didn’t break the law by denying service on the basis of a service animal:

However, the Accessibility Directorate of Ontario did confirm that denying service to some because of their service animal violates the Ontario Bill of Rights, so I can’t see how how the Stennings or their lawyer can argue that they’re in the right.

Let’s unpack this a little more.

Public vs Private Space

I don’t know what the law has to say the status of your house as private space once you decide to rent rooms in it. But it seems to me that once you decide to open a business that lets the public into your life like that, you give up some of the right that you have to pull the “private space” card. I presume that no one held the Stennings at  gunpoint and demanded that they open a B&B. Anyone going into that business has to know that while they definitely have the right to set boundaries (within reason) about what guests can do, they also can no longer do exactly as they want in their home, all the time.

They may have to change behaviour to reflect that other people are in the house (keeping music and TV volume low, shorter showers, ensuring public gathering areas are always tidy.)

They may have to meet safety standards that they didn’t before.

Human rights standards need to be met. The Greenwoods aren’t interested in taking this to court, but maybe the next people with service dogs will be. The Stennings were just a step from violating the law under the AODA, and, if I understand the pending legislation correctly, would be in the wrong were it currently law:

(2)  No person, directly or indirectly, alone or with another, by himself, herself or itself or by the interposition of another, shall,

  (a)  deny to any person occupancy of any self-contained dwelling unit; or

  (b)  discriminate against any person with respect to any term or condition of occupancy of any self-contained dwelling unit,

for the reason that he or she is a person with a disability who is keeping or is customarily accompanied by a service dog, or who requires the accompaniment of a support person or the use of an assistive device to assist them with their service dog.

(Lawyers can feel free to tell me how I’m wrong, because the Stennings’ lawyer thinks I am…and Lord knows I’m no lawyer…)

And let’s not forget, they apparently violated the Ontario Human Rights Code.

If you don’t want to keep your home space private and not have business law affect it, don’t choose to run a business in your home.

And even if they weren’t in the wrong, or their behaviour had little chance in the near future of putting them in the wrong if repeated…what has refusing the Greenwoods service at the SunRise B&B got them? A bunch of negative publicity all over the internet – at least four different news articles, not including my blog post, plus the bad reviews on Facebook and the B&B listing sites.

I wonder if it was worth it.

Best for the Stennings and all other B&B owners who’d prefer to discriminate against those that use service animals to start thinking about how they’re going to deal with this issue, because mark my words…it won’t quietly go away.

Business Needs to be Business at the SunRise B&B

And if the Stennings and other B&B proprietors don’t like that idea…well, it’s really too bad.

People who rely on service animals aren’t doing so to be difficult. They have the animals because they’re disabled and the service animal helps them to function in society. Guide dogs in particular (like Romy) are expensive, highly trained, and they have papers to show they’ve been trained.

Denying someone service because of their guide dog is as bad as denying service (in an accessible building) to someone who uses a wheelchair, over concerns about the dirt that the chair will track in or that other guests will be disturbed by the sound of the elevator or find the electronic doors to be too slow to open and close, etc.

I admit that I don’t know what it takes to clean up a B&B thoroughly after a service animal has stayed there for a night or two.  But obviously other B&Bs manage it , because there are plenty of them in the US, and its Americans with Disabilities Act *does* require many B&Bs (there are exceptions, based on number of rooms to rent and whether the proprietor lives on premises) to accommodate people with service animals.    If a proprietor can’t manage whatever cleaning needs to be done, or can’t afford to hire help or someone to do it for them, then instead of painting disabled people and their service animals as a burden they shouldn’t be expected to shoulder, perhaps they shouldn’t be in the B&B business.

No other business owners in Ontario gets to pick and choose which pieces of accessibility legislation they feel like following – they have to accommodate disabled people. If added cost is involved, it’s a cost of doing business in Ontario.

Expectation of Accommodation

David Greenwood says he can’t remember whether he told the Stennings that he’d be traveling with Romy. Over and over again in the comments sections on media accounts of this story, I saw people saying that he should have made sure the the Stennings knew, in part because the “No Pet” policy for the SunRise B&B was posted on their website. To them I say:

And, as Kim Sauder said over at her blog, “Crippled Scholar”:

“It’s bad enough that systems aren’t in place to accommodate disabled people without advance warning (thus giving people an excuse to fall back on when a space isn’t accessible) but to suggest that we should have to announce our presence in situations we weren’t even expecting to require accommodations is absurd.”

Perhaps (and I realize I’m only speculating) that’s why David Greenwood can’t remember whether he mentioned he had a service animal when he made a reservation at the Sunrise B&B: it’s relatively difficult in 2017 to find a business that won’t accommodate a guide dog like Romy, that provides support because of a documented disability and has all the papers to prove it.

Perhaps he wasn’t thinking that much about it because he assumed that the Stennings, like most business owners in Ontario, know that you can’t deny service based on use of a service animal, and didn’t expect to have to identify himself in advance as disabled in order to receive accommodation.  After all, it’s also just a bad business decision to get embroiled in this sort of thing. When business owners try to bar people on the basis of needing a service animal – surprise! – it often makes the news.

As blatant ableism sometimes does.

Bottom Line

This was an unfortunate situation all around. Here are the takeaways as I see them:

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Thoughts on “Unite the Right”, Trump, and This Blog

I have some things I want to say about the weekend’s events with the “Unite the Right” protest in Charlottesville, Virginia…but it’s mixed in with some other stuff, so bear with me…

Content Note: alt-right, Andrew Anglin, Charlottesville, David Duke, Donald Trump, Jason Kessler, Protest, Racism, Terrorism

Swatika in a bold red circle with a slash through it. Keyword: Unite the Right

Image Description: Swastika in a bold red circle with a slash through it.

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It’s important to me to be fair. I like to try, to the greatest extent possible, to see all sides of the story.

It’s been important to me not only to comment on how Donald Trump and his statements and policies violate the rights of others, but how attitudes toward:

have been ugly and at times hypocritical as well.  Not because I like him – I don’t like Donald Trump at all. But because Donald Trump and the people around him have rights, too.

I feel like I’ve been fair.

But I’ve decided after this weekend that this blog won’t be a space anymore where Trump his administration get protective space. I started leaning that way after his tweet in July about barring transgender people from the military. I see now that he’s pursuing that course of action and I just…don’t want writing a defense of Trump in light of legitimately problematic ways that he and his administration are talked about (like falling back on sexism to criticize Kellyanne Conway) to be mistaken for support for Trump’s policies and how he conducts himself as President.

I’m especially resolved on that decision after his response to the “Unite the Right” protest.

Trump’s Response to the “Unite the Right” is Unacceptable

On Saturday, Trump said:

We condemn in the strongest possible terms this egregious display of hatred, bigotry and violence, on many sides. On many sides. It’s been going on for a long time in our country. Not Donald Trump, not Barack Obama. This has been going on for a long, long time.”

It’s hard to know where to start, especially since Homeland Security Adviser Tom Bossert was (badly) defending the statement on Sunday.

And good for the GOP who are breaking rank and letting the President know that his statement was unacceptable. Credit where it’s due.

Andrew Anglin, a prolific neo-Nazi with a large following, had this to say about Trump’s speech:

“Trump comments were good. He didn’t attack us. He just said the nation should come together. Nothing specific against us. He said that we need to study why people are so angry, and implied that there was hate… on both sides! So he implied the antifa are haters. There was virtually no counter-signaling of us at all. He said he loves us all. Also refused to answer a question about White Nationalists supporting him. No condemnation at all. When asked to condemn, he just walked out of the room. Really, really good. God bless him.”

Something that the White House should consider, perhaps.

As for what I need to say on all this…

The Alt-Right Can Believe Offensive Things If It Chooses

I’m not disputing the “Unite the Right” protesters’ right to gather and protest the removal of General Lee’s statue, any more than I dispute the right of the people to counter-protest “Unite the Right.” Not because I believe in what “Unite the Right” stands for, by any means. I think that the alt-right’s beliefs are disgusting and their justifications for those beliefs are ridiculous. I think that it’s pathetic that the removal of a Confederate statue got the movement so riled up. But just because I (and most of America) doesn’t agree with them doesn’t take away their right to peaceful protest. If I’d believed for a second that the “Unite the Right” protesters had actually come with legal, peaceful protest in mind, I wouldn’t have been so concerned when I heard that the protest was in the works.

But, as we all know now (and I think we all suspected),  “Unite the Right” wasn’t intended to be just a peaceful protest of a statue’s removal. Marching onto a university campus at night with torches, yelling racist statements, isn’t peaceful – it’s a terrifying act of intimidation and violence.

They marched up the door of a church where an interfaith prayer service for peace was going on, making people scared to come out.

Counter-protesters reported that they had torches swung at them and pepper spray and lighter fluid used on them.

And that was Friday night; the official “Unite the Right” protest didn’t even begin until Saturday.

Peaceful protest was never the intent.

And I’m aware that the counter-protesters were violent as well. Earlier today, “Unite the Right” organizer Jason Kessler was  escorted away by police from where he tried to speak at the protest, after being  shouted down by the crowd and being pushed and tackled. I’m not going to defend assaulting Kessler. Violence isn’t appropriate, period. It doesn’t get anyone anywhere, and creates an atmosphere where everyone is unsafe.

However, those that are criticizing the counter-protesters for being violent need to acknowledge that the alt-right folks set the tone for the weekend on Friday night when they terrorized the UVA campus.

Their antics that night may not have legally been terrorism, but they were certainly an act of terror in spirit, escalated the next day by an act that was clearly domestic terrorism –  and because of it  19 people were injured and a woman, Heather Heyer, is dead.

As Jake Tapper said to Tom Bossert: “How many people did the counter-protesters kill?”

Headshot of a white woman, 32, with curly reddish hair and amber eyes. She is weaing pink lipstck and eye make-up in blue and purple tones. She has light freckling on her nose, and dimples. She is smiling. Keyword: Unite the Right
Heather Heyer, 32

Image Description: Headshot of a white woman, 32, with curly reddish hair and amber eyes. She is weaing pink lipstick and eye make-up in blue and purple tones. She has light freckling on her nose, and dimples. She is smiling.

Donald Trump Owes America More Than What He’s Been Giving It

Donald Trump refuses to call these things out for what they are or give any compelling argument that he’s committed to making America a place where all people truly are equal, and that makes me sick – because he’s the President, and even if the “Unite the Right” protesters had sat cross-legged in a park in silent meditation all weekend, he still shouldn’t be behind what they believe, or what any group whose philosophy involves restricting the rights of Americans based on race, sex, religion, sexual preference, gender identification, or disability believes.

And he should be prepared to say so clearly and definitively. When David Duke says about the President, “We’re doing this in your name,” a President who truly believes in an America where everyone is equal says, “Stop. Immediately. I don’t want to be associated with what you, your beliefs, or what you do.”

Duke, on what “Unite the Right” represents to him:

“This represents a turning point for the people of this country. We are determined to take our country back. We are going to fulfill the promises of Donald Trump. That’s what we believe in. That’s why we voted for Donald Trump, because he said he’s going to take our country back. And that’s what we’re going to do.”

I fear for a country whose President won’t denounce hate.  And I don’t want my blog to be a place where he gets anything that can be construed as defence anymore. I’ll be thinking very carefully about what I write about Trump in the future.

I feel like I need to make my allegiances clearer… and that I owe my American friends more than what I’ve been giving them.

I know that none of this is much help to a country that’s frightened and grieving and feeling very divided – but it’s what this Canadian has to give today.

And maybe this, because Trae Crowder always nails it…*foul language – NSFW*

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BC Town Will “Explore” Improving “Q to Q Ferry” Accessibility…Maybe

I already put a link up on the Girl With The Cane Facebook page to mssinenomine’s blog post about the City of New Westminster’s new “Q to Q Ferry” service, but I wanted to follow up with some comments of my own.

Content Warning: Ableism, Lack of Accessibility

Concept illustration showing a wheelchair in front of stairs, to represent something inaccessible Keyword: Q to Q Ferry
Lack of accessibility leaves people out.

Image Description: Concept illustration showing a wheelchair in front of stairs, to represent something inaccessible.

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The City of New Westminster, British Columbia, is running a ferry service to connect two communities, Quayside and Queensborough, which are separated by the Fraser River. It’s a pilot project that runs until late September.

It isn’t accessible – there’s a step to get on the ferry.

Specifically, the website says:

“The ferry can carry up to four bikes per sailing on a first-come, first served basis. Although walkers, strollers and bicycles are permitted on the ferry, the use of wheelchairs and scooters is not supported.

As the ferry docks are located on the Fraser River, which is subject to a large tidal height difference, the access ramp can be steep at times and there is a step to get onto the ferry. Cyclists, passengers with strollers and those with mobility challenges should use their judgement about whether they are capable of using the ramp and ferry based on conditions at that time, should exercise caution and use the available handrails as necessary. If the demonstration service is extended into a longer trial or permanent service, the City would explore ways to improve the accessibility of the ferry terminals.”

This is why Canada need a federal Canadians with Disabilities Act, by the way. Because given that these attitudes about accessibility are out there, it’s going to take government legislation with some teeth in it to make accessibility a reality, and not all the provinces aren’t going to make those laws by themselves – currently only Nova Scotia, Manitoba, Ontario and Quebec have disability legislation on the books. British Columbia is working on legislation.

An Act is in the works under the Trudeau government. But today I’m concerned with attitudes.

Lack of Accessibility is Bad Optics

I wrote this post on accessibility several years ago, about how if buildings aren’t accessible, if wheelchair ramps aren’t kept clear in the winter, if electric doors don’t work, if there’s even just “a little step” to get into a place, you send a powerful message to disabled community residents (and disabled visitors to your community, and their families, friends, caregivers, and anyone who’s ever been affected by poor access and who notices when it’s available/not available):

  • When you don’t maintain the features that make your business accessible (keep ramps clear, maintain electric doors, etc.), you say to disabled customers, “You’re disposable – we don’t care if you can’t get into our business and on that basis decide to go somewhere else.”
  • When your business isn’t accessible, period, it says to potential disabled customers, “We don’t care that you’ve got money to spend here. We’d rather not have your business.”

Both leave me thinking, “Why is a wheelchair user’s money not as valuable as a non-disabled person’s money?”

The Q to Q Ferry’s “We’d Rather Not Have Your Business” Plan

The Q to Q Ferry seems an especially egregious accessibility offender because its website makes it sound as if the City of Westminster figured that whether or not it could make the ferry accessible shouldn’t have a bearing on the ferry’s sustainability as a long-term venture. The “we’ll get to it if it becomes an issue” attitude toward ferry accessibility is significantly flawed in that accessibility is already an issue (not for the City, apparently, but certainly for people who use wheelchairs and scooters) and it’s reasonable to ask why the City wouldn’t acknowledge an accessibility issue at the ferry’s planning stage; there’s nothing about disability in the RFP (provided to mssinenomine by Alice Cavanaugh) :

  • Did the City forgot disabled people as it planned the “Q to Q Ferry” project?
  • Did the City consider disabled people, but didn’t figure that they’d want to use the “Q to Q Ferry” service, and figured accessibility planning was unnecessary?
  • Did the Vity consider disabled people, but didn’t figure that accessibility was a big enough issue in general that the “Q to Q Ferry” plan needed to consider it?
  • Did the City figure it could save money by not addressing accessibility right away and just hoped that no one would bring up the issue? (My money is on this one)

Whatever the reason, the City of New Westminster has shot itself in the foot, because they don’t have everything they need to evaluate whether their pilot project is sustainable. It won’t know at the end of September whether disabled people would use the ferry even if they could (including people with mobility difficulties who don’t use a chair, but might have trouble on the ramp, per the website warning); it will have no idea what the revenue stream from that demographic could be. It won’t know what it will cost to operate an accessible ferry, and therefore whether it has been charging enough over the summer.  When you prevent a group of people from accessing a service, you run this risk, as mssinenomine also observed:

“Whatever information gathered from this trial will be flawed because the trial itself is flawed. The City of New Westminster will have no idea how well large the need for this service is, because it has, by design, excluded an entire segment of the population who may or may not want to use it.

Are these the best times? Intervals? How do bicyclists, people pushing strollers and wheelchair and scooter users interact with other pedestrians? Should boarding be prioritized? How effective is our wayfinding?”

And it didn’t count on bad publicity.

Disabled People Know How to Spread the Word

Bad publicity not just from me and from mssinenomine and the reach of our blogs, but from the CBC.ca article that says that the ferry isn’t accessible to wheelchairs and scooters, and disabled people in the City of New Westminster itself, the disabled visitors to that city…and every family member, friend, caregiver, service provider, and everyone with a vested interest in accessibility, because we get the word around about these things. It’s a very big community, and it recommends businesses and services on the basis of how accessible they are and says, “Don’t bother” about the ones that aren’t.

I do let businesses know when I’ve encountered an accessibility issue and give them a chance to address it before I move on. But if it’s something that’s easily fixed and it doesn’t get fixed, or if I get a bad reaction to bringing it up (like “If the demonstration service is extended into a longer trial or permanent service, the City would explore ways to improve the accessibility of the ferry terminals,”) I won’t go back. And I’ll tell people exactly why.

Why should I use the services (or recommend to other disabled people that they do the same) of a business that’s just willing to “explore” becoming accessible given a set of circumstances? Either my money is good enough for them or it’s not.

It’d be nice to get the Mayor of New Westminster’s input on this, wouldn’t it? mssinenomine talked to him on Twitter – check it out. And thank you to mssinenomine and to the Disability Visibility Project for bringing the story of the Q to Q Ferry Service to my attention.

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Trumpcare, Mental Health, and the Goldwater Rule

Back to politics today for  a moment…because there’s something I want to say, and because I’m struggling with something about Donald Trump and the Goldwater Rule.

Content Note: Ableism, Healthcare, Politics, Trump, Mental Health

Senator Susan Collins, a white woman with short red hair wearing a dark blazer, white blouse, and pearls, stands in front of an American flag background. Keyword: Goldwater Rule

Image Description: Senator Susan Collins, a white woman with short red hair wearing a dark blazer, white blouse, and pearls, stands in front of an American flag background.

Although I have Republican friends that I cherish in spite of our differences in opinion, regular readers know that as a group I’m hard on them. I’ve called them out, sometimes by  name (some have told me unfairly.) I don’t believe that I’ve been off-base.

But I also believe in giving credit where it’s due. So, to Senator Susan Collins of Maine and Senator Lisa Murkowski of Alaska, who’ve stood firm in this round of Obamacare repeal deliberations that what’s been included in the proposed repeal scenarios are not good for their constituents, despite bullying from Donald Trump, thank you. Thank you on behalf of my disabled American friends, and the children, families and elderly people of America that not only depend on Medicaid to keep them happy and healthy, but depend on it to keep them alive. Thank you for insisting that America be a country where everyone is taken care of. Your integrity and courage give me hope.

Senator Lisa Murkowski of Alaska, a white woman with short blonde hair wearing a red blazer, a write blouse, and a pendant on a chain, stands in front of some trees. Keyword: Goldwater Rule

Image Description:  Senator Lisa Murkowski of Alaska, a white woman with short blonde hair wearing a red blazer, a write blouse, and a pendant on a chain, stands in front of some trees.

Thank you also to John McCain, a man with whom I’ve definitely had my disagreements, who came to Washington in spite of his cancer diagnosis, right after brain surgery, speaking eloquently about bipartisanship and the need to work together to craft a plan for healthcare, pushing himself through the week and into the early hours of the morning last Friday night to cast the vote that brought down Trumpcare. Sir, I salute you.

Senator John McCain, a white male in his 70s with white hair wearing a navy blazer and blue dress shirt. stands against an American flag background Keyword: Goldwater Rule
MESA, AZ – June 4: Senator John McCain (R – AZ) appears at a town hall meeting on June 4, 2010 in Mesa, Arizona.

Image Description: Senator John McCain, a white male in his 70s with white hair wearing a navy blazer and blue dress shirt. stands against an American flag background.

I won’t ever forget what the three of you have done for my American friends.

And to the rest of GOP who are struggling with the idea of single-payer as an idea for health care in the US…on one level, I get it.

Didn’t think I’d say that, did you? Well, I’m nothing if not practical. Single-payer isn’t a perfect system. Not by a long shot. Are there wait times? There can be, for non-emergency issues especially. Is it bureaucracy-heavy? Not any more than the bureaucracy created by the American system having to deal with many insurance plans, I’d argue, but I could be wrong. But even though I waited a couple of months for the functional MRI that the AVM Clinic at Toronto Western Hospital needed to decide how to best treat my AVM, I didn’t have to worry about whether my family could afford to have one of the best neurosurgeons in North America specializing in AVM treatment rooting around in my head for 14 hours.

Take our system and make *your* single-payer system better. Show us up. In fact (if it’ll get you moving on this), I’ll bet that you can’t do it. Go ahead and prove me wrong.

Please! 🙂

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Now…why I’m struggling.

Donald Trump, Mental Health, and the Goldwater Rule

Last week, two friends who work in the mental health field, for whom I have a great deal of respect, said that despite their concerns about the Goldwater Rule, they firmly believe Donald Trump has a mental health condition and needs evaluation to determine whether he’s psychologically healthy enough to continue on as President. The American Psychoanalytic Association officially said recently that members shouldn’t feel restricted by the the Goldwater Rule when discussing Trump.

This is a tough one for me. I don’t like Trump at all, simply because I don’t tend to like people that are lying, arrogant bullies.  But I’ve fought hard against the idea that he’s unfit for office because he’s “crazy” because:

  • Even the most qualified mental health diagnostician would need time and access to Trump to make an accurate diagnosis
  • If the policy is that a clean bill of mental health is required to be the President, then Presidents as far back as Lincoln have been in violation
  • It’s ableist. There’s no reason that a President with a well-managed mental health condition should be treated any differently, in terms of perception of ability to govern, than a President with any other sort of well-managed condition.

And I think that ultimately I still believe that the Goldwater Rule should apply to the position of the President, provided that some other safeguards are put in place (because we do know that Presidents have had mental health conditions, and even degenerative brain conditions, that went largely unnoticed while they were in office):

  • Any President (not just Donald Trump) gets his or her mental health evaluated by an independent mental health practitioner on a regular basis. (I don’t know if this happens, or how often.) The Presidency is an extremely high-stress job, and it’s not unreasonable to periodically check at the very least whether that stress is having an adverse affect on the President’s well-being.
  • Concerns about the President’s mental health are treated like concerns about the President’s physical health – they are quickly, and thoroughly evaluated and, if necessary, treated. The President takes time off work if necessary, but the assumption is that he or she will be able to return to work, and that it will happen as soon as possible. The public is entitled to no more information than it would be if the President had a physical issue.

In other words: If the White House properly monitored the President for mental health conditions and ensured that if there were any conditions that were affecting the President so much that they interfered with his or her ability to govern that the President took time off (if necessary) and received the treatment and education needed to ensure that the condition was well-managed and no longer an issue…then I’d continue to stand on the Goldwater Rule and say, “It isn’t up to people who’ve never spoken to President to make a diagnosis. It’s up to the White House.”

But I don’t have that confidence in this White House. They can’t even make Donald Trump stop using his phone. They’re not going to convince him to let someone do even a simple mental health evaluation, or start treatment if that was deemed necessary – and Donald Trump is not a man that would step down. Not for the good of his health. Not even, I don’t think, for the good of his country.

So, I Struggle…

I’ve struggled as I’ve watched mental health diagnosticians openly break the Goldwater Rule since Trump’s election with their pronouncements in the media that he’s got any number of mental health conditions.

I struggle now, wondering if they were right to break the Goldwater Rule the way they did.

I don’t think that a mental health condition should automatically disqualify anyone from any job – I know too many people with well-managed mental health conditions that are in high-stress positions and that do an excellent job. But, like my friend said:

Whether someone agrees or disagrees with the content of his inflammatory statements, that is not the issue. This is not a matter of attributing mental illness because of disagreement with his views/statements. If you go back and view interviews with him from decades ago, he’s still the same big jerk, but his behavior has changed.”

It’s one thing to be a seventy-year-old civilian man with no insight into behaviour change and perhaps the need for help, and with apparently no one around you who will call you on that blind spot. It’s quite another thing when you’re the most powerful man in the world.

I think I know now where I land on this. If the White House won’t take action when there are indicators that the President needs treatment for a mental health condition, other people with experience and knowledge in the field of mental health need to be allowed to speak without fear of what it could cost them. It’s ableism to say, “People with a mental health condition can’t be President,” but it’s not ableism to expect Presidents that do have mental health conditions to work with their staff and medical team to manage those conditions so that their ability to govern isn’t affected.

To be clear:  Mental health professionals who are worried that Donald Trump isn’t competent to lead need the freedom to speak about it. Someone has to.

 

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Michelle Sutton, Autism and Self-Diagnosis

In 2014, Jerry Seinfeld, in an interview with Brian Williams, said, “I think – on a very drawn-out scale, I think I’m on the spectrum.”

Asked what made him think that, he said, “You’re never paying attention to the right things. Basic social engagement is a struggle. I’m very literal; when people talk to me and they use expressions, sometimes I don’t know what they’re saying. But I don’t see it as dysfunctional. I just think of it as an alternate mindset.”

Content Note: Self-Diagnosis, Support/Services Eligibility

Jerry Seinfeld at a premiere, waving to the camera with one arm while his other hand is around his wife Jessica's waist. Keyword: Michelle Sutton
Jerry Seinfeld
“Bee Movie” LA Premiere
Mann’s Village Theater
Westwood, CA
October 28, 2007
©2007 Kathy Hutchins / Hutchins Photo

Image Description: Jerry Seinfeld at a premiere, waving to the camera with one arm while his other hand is around his wife Jessica’s waist.

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The Autism Community Reacts

I remember anger from the autism community at his comments, like Kim Stagliano’s reaction, Ginger Taylor’s article (I remember this one specifically), and this post from Autism Daddy’s blog.

I don’t remember picking up on this distinction: The people who felt most negatively about Seinfeld self-diagnosing himself seemed to be parents. Autistics like John Elder Robison seemed more positive, encouraging the autism community to welcome Seinfeld. Lots of excellent points in his article.

But I don’t remember reading it in 2014. I don’t much positive reaction at all to Seinfeld’s comments. Maybe that’s why this enthusiastic post by Michelle Sutton about how she self-identifies as autistic confused me so much initially. I didn’t think that self-diagnosis was something was accepted or encouraged by any disability community.

How Would Michelle Sutton React to My Self-Identification Process?

To be fair, I’ve never really heard someone self-identify (the term that Sutton prefers to self-diagnosis) as a stroke survivor. For those that insist on self-identifying as being clinically depressed or having obsessive-compulsive disorder (two things with which doctors have diagnosed me), I tend to shift the conversation onto feelings and away from labels. Something about the person’s feelings made them self-identify that way, regardless of whether the self-identification is accurate or not. Or whether I believe it’s not. I’m often skeptical when people say things like, “I’m really depressed” or are convinced that they have OCD because they wash their hands a lot, but we can connect on feelings.

I’ve long figured, just from my own research and experience, that I have Attention Deficit Disorder. No one explored the possibility when I was a kid (I think likely because my grades were good). But as an adult, I can see ADD traits in myself, both now and when I was a kid:

  • Constantly losing things
  • Forgetting appointments
  • Getting and staying organized
  • A lot of problems with daytime sleepiness

The ADD assessment isn’t covered by Ontario’s health plan and is very expensive (not a reason I actively avoid trying to get a medical diagnosis, as Michelle Sutton does, but certainly a reason for why getting one isn’t possible right now.) I’ve told people that I suspect that I have ADD and will talk about the reasons why. But I don’t self-identify with it. It doesn’t feel right to me.

I can imagine why Michelle Sutton might tell me that I’m misguided, and I might talk with her about how her anti-psychiatry stance and “I’m being defiant” doesn’t work for me. And for me, ultimately, I’d rather have a doctor’s diagnosis, but I admit to bias – having worked in social services, I know that no diagnosis means no support services.

But even if it turns out that Michelle Sutton isn’t autistic beyond her self-identification, and I’m not suggesting she isn’t, if she’s found ways through her research and her connections with the autistic community to become more comfortable with all aspects of herself, and the community itself is supportive, who am I to judge?

I don’t talk with other people who have ADD…but I read some blogs on a regular basis, and I know that adopting some of the strategies that people use to stay organized have helped me to become more organized and less stressed out about losing things all the time. So even if I don’t have ADD, who’s harmed if I use the strategies and they make my life easier? No one that I can see.

I’ll have to do some more thinking about this. In the meantime, I’m glad that I read this blog of Michelle Sutton’s. At the very least it corrected some of my  erroneous thinking about the autistic community’s stance on self-diagnosis. I will put her blog on the list that will go on this site’s blogroll (when I get time to put it up!)

ETA: Seinfeld later backtracked on his comments and said that he wasn’t on the autism spectrum

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Back to WordPress! With a Focus on Web Accessibility…

Well, I’m back to blogging. On my new WordPress set-up.

Here’s some advice to all of you bloggers and would-be bloggers out there: If you’re going to move your large blog off WordPress to another platform, be darned sure that you’re going to be satisfied enough with the new platform that you’re not going to want to move back. Because it’s very easy to move a large blog off of WordPress…it’s a hell of a lot of work to move it back on.

Especially if you’re committed to making your blog as accessible as possible.

Laptop with wheelchair icon in a yellow diamond sign, centred on the white screen. Keyword: Accessibility

Image Description: Laptop with a white screen. The wheelchair icon in a yellow diamond sign is centred on the computer screen.

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An Apology Re: Accessibilty

Despite all my talk about physical accessibility, I’ve historically not been very good about ensuring that the blog is as web accessible as it could be, and that’s not something that I feel good about. Until this summer I didn’t really know what it took to make a website accessible, but as someone who at least knew that it was possible for websites to have accessibility barriers on them that could be fixed, I should have taken the time to investigate my own site for barriers and fix what I could.

I’m sorry.

What Brought This On and Where I’m Going Now

This summer I took a course in auditing websites for accessibility. I know what the issues were on the old blog. I’m trying to clean them up on this blog, post by post. I moved from Medium partly because I didn’t have enough access to the code to do that.

I’m trying to clean up at least 5 posts a day, but this will take a little while. Give me until Labour Day. If after then you still spot accessibility issues – like photos without alt text or an image description, or uncaptioned videos (CNN videos are bad for having no captions) where there isn’t an option on the YouTube frame to turn them on and I haven’t provided a transcript, please let me know at admin@girlwiththecane.com.

And for those that have trouble seeing the self-hosted blog, I’ll still cross-post to Medium publication.

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